Abstract
Introduction: The rare and orphan diseases (ERH) constitute a current challenge due to the little attention given to them. Objectives: Describe the socioeconomic characteristics of rare and orphan diseases (ERH) in Peru, 2019. Methods: Descriptive observational design. The information was obtained from FISSAL administrative records and an intentional sample of 20 patients was taken to carry out the questionnaire on ERH. For economic records, a review of the public budget of the MEF was made. The data analysis was descriptive and inferential. Results: There were 454 patients with a total of 49 ERH, of these, the most representative age groups were schoolchildren and young adults (18% each) and the most frequent diagnosis was Tetralogy of Fallot (22%). The questionnaire on ERH reports a median of 7 months in the delay of diagnosis and between 3 and 5 doctors were visited. Likewise, 30% considered that it generated a high to very high expense. It was calculated that the ERH budget constitutes 2.25% of the total budget for high-cost diseases, likewise, the ERH budget was different between 2014 and 2019. Conclusions: The population with ERH in Peru is not large; however, it requires greater attention to access to health services, as well as a greater budget allocation.
Translated title of the contribution | CARACTERÍSTICAS SOCIOECONÓMICAS Y COSTOS DE ENFERMEDADES RARAS Y HUÉRFANAS EN EL PERÚ, 2019 |
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Original language | American English |
Pages (from-to) | 732-740 |
Number of pages | 9 |
Journal | Revista de la Facultad de Medicina Humana |
Volume | 21 |
Issue number | 4 |
DOIs | |
State | Indexed - 23 Sep 2021 |
Bibliographical note
Publisher Copyright:© 2021 Universidad Ricardo Palma, Facultad de Medicina Humana. All Rights Reserved.
Keywords
- Cost of illness
- Economics
- Health economics
- Peru
- Rare diseases